THE Debra Butterfly Children’s Charity recently launched a campaign to raise the public’s awareness of Epidermolysis bullosa (EB).
Entitled The truth lies beneath, the campaign features a video showing one minute out of the three hours of daily treatment that a small girl must endure every day of her life, explained Mary Chambers, manager of the Butterfly Children Charity Shop in Urbanisation La Marina.
This condition, where the lightest butterfly touch causes severe blistering and open wounds, currently affects 500 people in Spain.
Debra Butterfly Children’s Charity was founded in 1993 by the parents of a boy with EB and is the only organisation in Spain that supports children and their families.
The organisation raises funds to promote awareness, finance research and maintain a team of dedicated health care workers who help families. Nurses, psychologists and social workers also assist with specialist advice and information for national health service doctors and care workers.
The Covid-19 crisis has severely affected the charity’s ability to continue its essential work and it has seen an 80% reduction in income.
By making a donation or by becoming a member at www.pieldemariposa.es it is possible to make a real difference to the lives of these very vulnerable but extremely brave families.
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