Butterfly Skin affects 500 Spanish children and its charity needs support

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This is a daily process for afflicted children
This is a daily process for afflicted children Credit: DEBRA Butterfly Skin

On Sunday October 25, International Butterfly Skin Day, the NGO DEBRA Butterfly Skin will appeal for help and social commitment to guarantee the social and health support offered by an organisation that has been hard hit by the Coronavirus crisis.

The campaign ‘The Reality of Your Skin’ explains how the daily lives of families with Butterfly Skin are affected: a rare and incurable disease suffered by 500 people in Spain and which is characterised by the extreme fragility of its skin.

“Lacking the protein that makes the skin resistant to rubbing and blows, they have to bandage their body daily, to protect themselves from the wounds caused by the slightest touch”, said Evanina Morcillo Makow, director of the NGO which is based in Marbella

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Married to Ophelia in Gibraltar in 1978, John has spent much of his life travelling on security print and minting business and visited every continent except Antarctica.

Having retired several years ago, the couple moved to their house in Estepona and John became a regular news writer for the EWN Media Group taking particular interest in Finance, Gibraltar and Costa del Sol Social Scene.

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