EIGHT month Alexander K – known as Sasha – was born with an exceptionally rare medical condition.
Sasha, a baby boy born in Tomsk, Russia, suffers from an extreme form of rare SOX2 anophthalmia syndrome, and was born without eyeballs. According to reports, only three such cases have been registered.
As Euro Weekly News understands, Russian doctors say bar the rare SOX2 anophthalmia syndrome, the baby boy is ‘completely healthy’, making him unique. However, as reported by the Daily Mail, doctors have informed that Sasha will never be able to see unless there are “stunning medical breakthroughs during his lifetime.”
The baby’s young birth mother learned about the rare and difficult disability when she was 31 weeks pregnant and put him up of adoption believing that, in her circumstances she would not be able to care for him.
Sasha’s story came to light when journalist Svetlana Syrova revealed the boy’s story two months ago. A story which triggered interest from around the world in adopting the Russian boy.
It was revealed yesterday, Wednesday by adoption officials in Tomsk that a warm and loving family in Russia had been found for Sasha and that he was already with them for the festive period.
‘Little Sasha was taken into care by a Russian family from a different city,’ said a spokeswomen as reported by the Daily Mail.
Svetlana Syrova, the journalist who initially revealed the story about Sasha, said it was ‘special Christmas magic’ that led to the boy getting adoptive parents.
According to The Siberian Times, full details of the family cannot be revealed, however, Sahsa will have “sisters to play with in his new family and a summer dacha – country house,”.
Tomsk doctor, Tatiana Rudnikovich, informed local press that: “Sasha is going through all regular check ups and tests like any other baby of his age.”
Tiny eye orbs were implanted into Sasha’s eye sockets to ensure that the boy’s face does not grow deformed and he will have new ones implanted every six months as he grows.
It’s reported that Sasha is “no different to other children,” that he plays and smiles just like any healthy baby. He loves playing and adores swimming, he is a “very cheerful baby indeed.”
Sasha’s adoption page described him as ‘a peaceful, smiling baby’ adding “he smiles back as soon as he hears familiar voices.”